Expanding Definition of Autism

Found these great articles by Thomas Sowell, and although I’m liberal, not conservative, and I don’t entirely agree with all his views, I really admire his no-nonsense style. Here are excerpts from two articles he’s written for Capitalism Magazine on the expanding definition of autism.

https://capmag.com/article.asp?ID=1762

Expanding Definitions and Suspicious Statistics Thomas Sowell (July 30, 2002)

“…A child who is likely to be diagnosed as autistic today might not have been some years ago. Yet that is seldom mentioned in alarming statistics about the escalating number of cases of autism. As the author of a couple of books about late-talking children, I hear regularly from parents who tell me that they are being asked to allow their children to be labeled “autistic,” in order to get either the government or their insurance company to pay for speech therapy.

It is amazing that, with something as serious — indeed, catastrophic — as autism, statistics are thrown around without mentioning the variation in what is being diagnosed as autism. In something much less serious, such as sales receipts at Wal-Mart, a comparison of how much money was taken in this year, compared to last year, will almost certainly make a distinction between sales receipts at the same stores as last year versus sales receipts that include new stores opened since last year.

In other words, they notify you of changing definitions behind the numbers. Otherwise, the statistics could mean almost anything. If it is important enough to do this for Wal-Mart sales, it certainly ought to be important enough to do it for autism.

Regardless of whether the old or the new criterion for autism is better, they are different criteria. Statistics should tell us whether or by how much autism has risen by any consistent standard. Moreover, those who diagnose autism range from highly trained specialists to people who never set foot in a medical school.”

https://capmag.com/article.asp?ID=3096

The Autism ‘Spectrum’ by Thomas Sowell  (September 16, 2003)

“… In the decade that has passed since I organized a support group of parents of late-talking children in September 1993, I have heard from literally hundreds of parents of such children, many of them re-living the anguish they went through when their children were diagnosed as autistic.

With the passage of time, it has become obvious that many of these children are not autistic, any more than Billy is autistic. Parents who are grateful that the hasty diagnoses their children received were wrong are also bitter that such labels were applied so irresponsibly — often by people who never set foot in a medical school or received any comparable training that would qualify them to diagnose autism. But professionals have been wrong as well.

Instead of trying to reduce mistaken diagnoses that inflict needless trauma on parents and often direct children into programs for autistic children that are counterproductive for children who are not autistic, the expansive new concept of an “autism spectrum” provides wiggle room for those who were wrong, so that they can avoid having to admit that they were wrong — and avoid having to stop being wrong.

It is as if people who told you that your little toddler would need a seeing-eye dog are able to get off the hook when the passage of time proved them wrong by saying that, because he now wears glasses, he is still on the blindness spectrum.

There is another aspect of this that affects the public in general and the taxpayers in particular. Time and again over the past decade, parents have told me that they have been urged to allow their late-talking children to be labeled “autistic” so that they would be eligible to get government money that can be used for speech therapy or whatever else the child might need.

Against that background, consider the widely publicized statistics showing an unbelievable rate of increase in autism in recent years. Is this a real change in the same thing or a redefinition of words? Worse yet, is this the corrupting effect of government money intended for children who are genuinely autistic?

Apparently no one knows the answer. But what is very disturbing is that such questions are not even on the agenda.”